Ava is getting worse, once again

Ava is having some more spells and is crying a lot. They are trying to figure out what is going on. She on a 45 sec spell and we had to rub her to get her to breathe again. She has only slept off and on for three hours in the last 24 hours. She is in some kind of pain. They just took some more x rays and blood. Her lungs looked better, but it showed a kidney stone in her stomach. Yes, a kidney stone.. .Never heard of that for a baby! So we are waiting to talk to the doctor. They are doing a video fluoroscopic swallow on Monday to see what is causing the pain. It is to check the problems causing breathing. So all we can do is wait and we are very tired.