Good Days Will Come

So Ava's swallow test today was good. She has no problems with reflex. When we feed her we just have to keep her up right. We had a little scare when we were waiting for the study to happen. Ava started shaking a little while I was holding her..she was sleeping on me...it almost was like a seizure. It was weird....hard to wake her up. The nurse had to take her and hold her upwards to get her to wake up. She finally did but it was very scary. So who knows what that was about. That girl keeps me on my toes. Today was very hard for me. It has been over two weeks now and I am emotionally drained. I miss my kids, husband, and of course Ava being home. The doctor says we will be her for a little while longer. Ava needs to be gaining weight and have more good days then bad. So she will most likely be here till her next surgery. So we are trying to keep strong and hope that we will have more good days to come.